Poynton PANDAS

Poynton PANDAS
"We truly believe that when you talk to others who have been through similar things, you take the first step on the road to recovery"

Tuesday 24 March 2015

Been doing my therapy "Doggie-Style"


Hi I'm Rhiannon, peer supporter at Poynton PANDAS. It occurred to me last week, during a group chat about anxiety, that my therapy has been my dog! After having talked about anxiety and what it is, we then moved on to discussing ways we could try to manage it. One of the mums said that fresh air is key for her. Another talked about trying to do less at home.... and then it dawned on me. Of all the methods I have tried to get well after suffering anxiety and depression twice, and believe me I have tried a lot of things and spent a lot of money, it was my DOG who was the best remedy. Ernie Dog. Diggidy Dog. Pig Dog. He helped me the most.

Here we are pre-twins (or the good old days as Ernie calls them). We are camping somewhere in Cornwall and we've just come back from a good old walk in the sunshine. We've topped up our Vitamin D, got the happy hormones flying again, shared a joke or two and terrorised some scoundrels on the beach! Yep that's us. Thick as thieves. Best Buddies. BFFs!! Seriously though I couldn't have got through these last 6 years without my dog. "What Beenie needs is a dog" said my sister after I looked like I was heading down the pan again with my emotions and mood. We had been trying for a baby for 2 years by then and I was feeling pretty desperate. I had overcome stress related anxiety and depression 3 years before and I recognised that it wasn't far away again. I had been signed off work for six months and was about to get married. A weekly painting course, accupuncture and lots and lots of gardening had got me through those dark days. But the burning desire to be a mum, coupled with infertility problems was starting to take its toll on me.

Paul researched and researched and eventually decided we would be getting a Springer Spaniel (family friendly you see) on the off chance that our years of infertility would end soon. Ernie arrived in our home just after Christmas and I instantly fell in love. He was naughty, demanding, cute, cried at night. He was everything I had ever wanted (in dog form) and he quashed those lonely, desperate yearnings for my own offspring.

4 months passed and I was made redundant. That was a toughie. What do I do now? Do I fight to find a busy and stressful role like the one I had or do I change my life? Ernie said "woof"..."you can spend more time with me". "We can walk and run and smile and get cross about me steeling other dogs' balls". So we did! We got up every day and hit that countryside hard! We met others. His favourite Dog was Solo and my favourite owner was Jane! We walked and walked and swam (him not me). I lost some of that stubborn PCOS weight. He got stronger and faster. We did this for months and months. All through the Spring and the Summer and he really helped me with the desperation I felt about not conceiving a child. We were at 3 years by that point. Lacking in any kind of direction, I made a decision to return to University and did a postgraduate course in Early Years Education. I loved the course and the time with my furry friend and, although I was very sad inside, Ernie kept me going.

A year down the line the course was complete and I had a new job in a new sector. Ernie and I were still happy as we got to spend lots of time together and I was about to embark on IVF. 19 days of injections and Ernie dog by my side. We kept walking and talking and meeting people and keeping well. 5 days worth of egg harvesting and fertilisation. We kept walking and talking and meeting people and keeping well. 2 weeks of waiting to do a pregnancy test and yep, you've guessed it... We kept walking and talking and meeting people and keeping well. "You are joking" said Ernie when I showed him my positive pregnancy test. "No I'm not" I said. "Let's gor for a walk" said Ernie. So we did.

We were still walking until a few days before I had the twins. I think by the point I was this big (around 36 weeks), I could only manage a flop around the park. He still got me into scrapes and ran rings round me. He thought it was hilarious to disrupt a crown green bowling championship when I was about to drop my own bowls. Those mean grannies and their shouty ways certainly got my hot, anxious tears flowing again. But we walked home and soon were best pals again.

Along came the twins and another encounter with anxiety and depression. This time I knew what was happening to me. I had been there before. Ernie recognised it too. "Let's get some happy pills and get walking" he said. Not as easy this time round with two newborns but we muddled through somehow and got out every day.



So for those of you who are contemplating a dog, while times are tough and stress levels are high DO IT. If you can give him/her time, love and walks, you will get a friendship that is stronger than anything. A dog never judges when you are low. Yes they know you're low and are gentler with you but they will insist you get out there. A doggie friend gives you something to get up for. The fresh air reduces those mean stress hormones. The dog reminds you about living in the HERE and NOW. Don't linger too long on the past or stress too much about the future. Get up. Get out. Enjoy the moment you are in now and do your therapy "Doggie-Style" too.


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Monday 9 March 2015

"Can you tell me if THIS is normal?"





Hi my name is Joanne. I live in Poynton and I am a mum to two cheeky rascals, Betsy and Jude.  Sadly, like so many others, I suffered with ante-natal anxiety and postnatal anxiety and depression when I had my second child, Jude.  Poynton PANDAS have really made an unbelievable difference to my life and that of my family.  If it wasn’t for speaking to Rhiannon who runs the group I certainly wouldn’t have sought help when I did.  PANDAS also placed me with a counsellor called Julia Larmer who was amazing and helped me make sense of what was happening to me and start on the road to becoming ‘me’ again.

Betsy was born in September 2011.  She was, thankfully, conceived soon after we started trying.  I can’t say I enjoyed pregnancy; it wasn’t really what I expected.   I felt like I was hungover for most of the first 16 weeks (dizzy, sick and tired) and during the pregnancy I had pretty much every minor symptom you can imagine!  Betsy’s birth was difficult, I was contracting regularly and strongly from the word go but I didn’t dilate past 6cms.  Eventually she was born by emergency c-section.  When I held her though I was very lucky, I felt immense love and a feeling that I would describe as euphoria.  I found being a mum very rewarding and generally loved it.  Betsy wasn’t the easiest of babies though and as time went on the gloss wore off a little and I began to wonder if I could manage with 2 children, as we had planned.  We decided that perhaps we would start trying after Betsy was 2. 

However fate had other plans and I unexpectedly got pregnant again when Betsy was 9 months old.  I was terrified by the prospect of having another baby; I wondered how on earth I was going to cope.  Those close to me were encouraging but I didn’t hear them.  I felt my life was out of control, I had just returned to work in a stressful job in Law and we were in the process of moving house.  I started to feel sudden waves of panic without warning, almost like somebody had startled me and made me jump.  I felt like I was suffocating and that there were no answers to the issues I felt I was facing.  I kept carrying on spinning the plates until one weekend I got ill with a flu like illness and fainted twice.  I went to see my GP and I ended up getting very upset and telling him about my anxiety.  He was very understanding and signed me off work with the intention of me getting some space and hopefully getting to the best place possible in readiness for the birth.  This was great advice as I gradually did feel better until the point that I just wanted my baby to be born so I could hold him and have that ‘moment’ that I had with Betsy.

Jude was born in March 2013 by elective c-section.  As soon as I was able, I held him and tried to feed him, as I had with Betsy.  He wouldn’t feed but I wasn’t concerned; I just thought he wasn’t ready yet.  However the midwife queried whether he was breathing properly and ran some tests.  I remember her ringing someone and then an incubator type cot arrived.  She said Jude had to be seen by a doctor and off he went.  I did not want to be separated from him and I felt very traumatised that we couldn’t be together.  I was unable to move though following a spinal block anaesthetic and I was taken on to a ward with mums and their new babies.  It transpired that Jude had a lung infection that they thought he had contracted in the womb.  Jude was ventilated and cared for in the intensive care unit of the neonatal unit.   I didn’t hold him again until 6 days after his birth.  He spent 12 days in the neonatal unit in total and I stayed with him either as an in-patient myself or in a bed on the neo natal unit.  It was awful being apart from Betsy but at the time she was quite a Daddy’s girl so she seemed to cope well.


When we came home, I initially felt happy to be home and very grateful that Jude was now well.  I felt driven and motivated to begin life as a family of four and I thought that if I could cope with what had happened initially then I could cope with anything.  I found that my husband and family didn’t really want to talk about what had happened, it seemed a bit of a taboo subject and people quickly shut down conversations before they really began. 

I can’t be precise about when I started to experience feelings of anxiety and post-natal depression, I think it was somewhere around the 6-9 month mark.  My symptoms appeared very gradually, with a drip, drip, drip effect. The symptoms I experienced were not what you might necessarily expect.  I think this was because I had a toddler too so I just had to keep going and keep going.   I became very irritable, negative, frustrated and angry. My internal voice was so horrible and I used to tell myself I was a bad person and a bad mother. I felt overwhelmed by things and like I just couldn’t cope with anything more. If I was alone with the two children all day I would worry how I would manage; I felt that something would happen that I couldn’t cope with.  I thought I shouldn’t have had children, I wasn’t deserving of them or good enough for them.   I felt it would be best if I left but thankfully I didn’t have thoughts of suicide.   However I could have periods of feeling fine and when I was in company I was usually quite jovial, I think it took my mind off things.

When almost everybody close to me irritated me and most days were bad, it occurred to me that I might have a problem.  Prior to that, I thought it was usually the fault of somebody else that I felt the way I did.  Looking back I felt scared and bewildered.  I didn’t know what was happening to me.  I remember thinking that it couldn’t be post natal depression as that was something that happened to people soon after birth.   I made contact with Rhiannon of PANDAS and we met for a coffee.  I thought I was wasting her time and that she would just reassure me I was a stressed mum of two.  I remember telling her my feelings and symptoms and needing constant reassurance. "Can you tell me if THIS is normal" I asked her repeatedly. It became apparent though as we were talking that my feelings were familiar to Rhiannon as somebody who had experienced post natal depression and had also helped people in similar positions. I decided to see my GP who luckily was very understanding.  Rhiannon also gave me Julia’s details and I started having counselling.  It made a huge difference almost immediately as Julia gave me strategies to help with feelings of anger and being overwhelmed.  Being able to discuss what happened to Jude also helped me gain the acknowledgement that I needed about how upsetting that situation was.

However I still had symptoms of tearfulness and feeling unable to cope with anything further.  My GP advised I start anti-depressants.  I was very reluctant initially but my GP explained anti-depressants as having a rebalancing effect on the brain and I decided to give them a go.  I felt that I really wanted to deal with my symptoms in order to make as full a recovery as possible.  Quite soon after, I started to feel better.  My symptoms started to fade and the old me began to emerge.   I remember being surprised when I did something that I would associate with my old self.

I think I am well now; I even feel like some good has come from the whole experience.   I am trying new things such as different forms of exercise, meditation and art and I feel much more content than I did even before I became ill.   I also volunteer for PANDAS in Poynton as I feel passionate about helping families who suffer with post natal illness and to try and raise the profile of post-natal depression which occurs later down the line.  Please, please do get in touch if you are struggling.  We really want to help.